Tumbling

Amanda and I signed Lyla and Becca up for a tumbling class.  Last night was their first night.  It was so fun! 

Becca caught on so fast and did everything the teacher told her to do.  Lyla was a little more shy about it and did a lot of watching everyone else at first, then she would join in.  Very cute!  I can't wait to take them again next week! 

I forgot my camera.  Amanda remembered hers, but the battery was dead.  So we will have to make do with the pictures and videos from my phone!

5 Things Friday / Heard Around the House #20

Ok, so here is the deal, I need to get caught up on my Heard Around the House stories, because I have some good ones and its Friday... soooo... I'm just going to come up with 5 of them!  Two Birds - One Stone as they say.  :)

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1.  Anytime we get out a board game to play with Lyla:

Lyla:  Wait, let me read the decorations first. 

Decorations... also known as "directions".

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2.  Anytime we have to go outside and its cold:

Lyla:  I have to put on my hat and glubs.

Glubs... also known as "gloves".

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3.  All three of us laying in bed last night.  Lyla stinkers.

Me:  Lyla, did you stinker?

Lyla: giggle giggle.. yes... giggle giggle

Me:  Well what do we say when we stinker?

Lyla:  PEE YOU (while holding her nose)

Me:  (laughing) Excuse me also works good.... 

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4.  Lyla is on the toilet.  Gary and I are both in the bathroom with her.  Its how she rolls, she likes an entourage no matter where she is...

Lyla:  Mommy is First, I'm the King and Daddy is Tall.

Gary and Me:  What???

Lyla:  (singing) Mommy is First, I'm the King and Daddy is Tall.

Gary and I look at each other like WTF? 

Gary:  (Thinking he is so funny, but two years olds do not get the humor)  Whose on first?

Lyla:  (screams - excited that he finally understands) MOMMY!!!!!

You may have had to be there for that one... it was completely hysterical though!

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5.  When Lyla was sick on Monday, I knew she had a fever, but I had no way of knowing if she had a headache or her throat hurt...

Me:  Lyla, does anything hurt?

Lyla:  My leg.

Me:  Ok.

Lyla:  And my toes.

.Me:  Ok.

Lyla:  And my armpits.

I guess she was achy??  lol

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Smile

I feel like we could all use a smile on this rainy day.  Its only Wednesday and its been a rough week in my house.  Lyla was sick starting Sunday and better enough today to go back to daycare, but not 100% yet.  I started with it Monday night.  I went to the funeral home for Cassie yesterday.  Things have just been rough...

But this video... well it makes me smile every time I watch it!  Lyla is a flower girl in two different weddings this year.  Her dress for Erin's wedding came in the mail on Friday.  I asked her if she wanted to try it on.  She said yes yes yes.. but let me get my crown first!  I'm a princess so I need a crown!  And I know the dress is too big and her boobies are hanging out which makes it that much funnier!  Hopefully she grows between now and the end of July!

Update

I know that I need to do an update.  And I know that whether or not I do an update does not change the reality of what has happen.  Its just so hard to see it in black and white.  It just makes it all so real.

For everyone who I have been keeping informed of the situation with my dear friend Amanda and her sweet baby girl Cassie, her short journey has come to an end.  Her and her amazing husband were put in a situation that absolutely no parent should ever be in.  Especially the loving parents that they are who would do anything for their kids.  That was the problem, there wasn't anything left for them to do.

I'm writing this with such a broken heart.  I know how hurt and sad I am over what has happen to them.  I know that I keep just asking myself WHY?  But I can't even for a second imagine the pain that they are feeling.  I would never even try to compare how I feel to what they are going through.

They decided yesterday that they had to turn off the life support machines.  There wasn't any future left for Cassie.  She was most likely going to have to live the rest of  her life on support.  She wasn't ever going to be able to feel their love.  She wasn't ever going to be able to live off of a machine.  She wouldn't ever really be living again no matter what decision they made.  So they did what they knew they had to do. 

I don't want to try to speak for them or what they are feeling.  All I can say is that they have more respect from me than I can even express.  They are great people who I am very glad to know.  I'm going to do whatever I can to help them through this.  Its the least I can do. 

I don't really know what else to say, so I'm just going to leave it at that.  Its just so sad and there isn't any explanation for it. 

I wish I had a better update

I've been delaying posting anything with hopes that Amanda would call me with a better update, but that hasn't happen yet.

Friday they had to put Cassie back on the ventilator so they could preform another MRI.  She was breathing on her own without it, but not well enough to do the MRI.

They haven't been able to get her back off of it yet. 

They are supposed to meet with the team of doctors sometime this week and try to come up with their plan for the future. 

Vent Tube is OUT!!

That's all....  :-)

Cassie

A little bit of a setback today.  Maybe not a setback, we will call it a delay.

Everyone had hopes of her getting the vent out sooner rather than later, but its not going to happen today and maybe not for a few more days.  The reasons are they need her to have better and more frequent cough/gag reflexes before extubating.  Also there isn't any leak around the tube right now.  So they need to give her some meds to decrease the swelling around the tube.

The positive is that she is doing very well breathing on her own with just the oxygen.  And its good that they aren't rushing things and are waiting until she is 100% ready before moving forward.

But as a mom who just wants so desperately for her baby girl to be better and to come home - its frustrating. 

Thursday will be two weeks since this nightmare began.  I'm sure the longest two weeks of their lives.