Erin made this really great video about Hendrick's personal journey with AS:
For more information, please visit these sites:
http://www.angelman.org/
http://cureangelman.net/
This is one of the few things in this world that you can be diagnosed with and there is actually hope for a cure. There IS A CURE and Hendrick will see it in his lifetime! We just want to help speed up that process as much as we can!
I want to share my thoughts since Hendrick was diagnosed. At first I was devastated. Just so completely heartbroken for my friend. Erin was being strong and taking it all head on.... I was scared. Just trying to wrap my head around what her future is going to be like. And then time moved forward, as it has a way of always doing. And Hendrick continued learning. He is figuring things out in his own way. We went to the bowling fundraiser last night and there was a little boy there with Angelman. Erin has made friends with his mom through all of this. Caleb is five and he was a true inspiration to me! He didn't talk, but he didn't have to! He was one of the sweetest little boys I have EVER met. And he WAS WALKING! There is hope. Of course if you want to be sad and believe this is a horrible sentence, you can google and find all sorts of bad information. But you can also search and find kids like Caleb who are living their lives. Its not the lives their parents envisioned for them, but they are ok. They are happy.
And with that, I would like to share this video with you:
