That's all.... :-)
Wednesday, January 16, 2013
Tuesday, January 15, 2013
Cassie
A little bit of a setback today. Maybe not a setback, we will call it a delay.
Everyone had hopes of her getting the vent out sooner rather than later, but its not going to happen today and maybe not for a few more days. The reasons are they need her to have better and more frequent cough/gag reflexes before extubating. Also there isn't any leak around the tube right now. So they need to give her some meds to decrease the swelling around the tube.
The positive is that she is doing very well breathing on her own with just the oxygen. And its good that they aren't rushing things and are waiting until she is 100% ready before moving forward.
But as a mom who just wants so desperately for her baby girl to be better and to come home - its frustrating.
Thursday will be two weeks since this nightmare began. I'm sure the longest two weeks of their lives.
Everyone had hopes of her getting the vent out sooner rather than later, but its not going to happen today and maybe not for a few more days. The reasons are they need her to have better and more frequent cough/gag reflexes before extubating. Also there isn't any leak around the tube right now. So they need to give her some meds to decrease the swelling around the tube.
The positive is that she is doing very well breathing on her own with just the oxygen. And its good that they aren't rushing things and are waiting until she is 100% ready before moving forward.
But as a mom who just wants so desperately for her baby girl to be better and to come home - its frustrating.
Thursday will be two weeks since this nightmare began. I'm sure the longest two weeks of their lives.
Monday, January 14, 2013
Cassie Update
Saturday Amanda finally got to hold her. I can't even imagine what that must have felt like! If it were me they would have had to pry my baby out of my arms once I finally got to hold her!
She has also started breathing over her ventilator. She has been beginning to cough and gag a little bit, which I'm told is what you want to happen because she needs to be able to do that to take the ventilator out. They are doing a CPAP trial this morning to see how she does breathing on her own and so far she is doing good.
Hopefully they can get her off of the ventilator within the next few days. I will keep everyone posted as I find things out. These are all just small steps, but the good thing is that they are small steps in the right direction.
She has also started breathing over her ventilator. She has been beginning to cough and gag a little bit, which I'm told is what you want to happen because she needs to be able to do that to take the ventilator out. They are doing a CPAP trial this morning to see how she does breathing on her own and so far she is doing good.
Hopefully they can get her off of the ventilator within the next few days. I will keep everyone posted as I find things out. These are all just small steps, but the good thing is that they are small steps in the right direction.
Friday, January 11, 2013
Sweet Baby Cassie
I've been going back and forth with myself about whether I want to write anything about this or not. And I think I've decided that I do. I figure any more people I can reach who can help support this poor family, the better.
Amanda and I have become very close friends very quickly. We live super close to each other and her oldest daughter, Becca, and Lyla are bestest buddies. Amanda was pregnant when we met and gave birth to little Cassie on November 11th.
Amanda and her husband the kids were all down to our house for our New Years Eve Eve party that Sunday. I hadn't talked to her all week and last Friday afternoon I sent her a text to see what their plans were for the weekend. I didn't hear back until after I put Lyla to bed Friday night. And that one little text crushed me and has changed every thought I have had in the last week.
She said that they had Cassie in the ICU and she is in bad shape. She would call me when she could with the details.
I didn't get to talk to her until Saturday afternoon. So from Friday night when I read the text until she called me Saturday I convinced myself that Cassie got some kind of cold or flu and since she is so little she just couldn't fight it off on her own. I was wrong.
So here is what has happen in the last week:
Thursday Night: Cassie woke up fussing during the night. Amanda didn't go in right away to see if she would put herself back to sleep. About 20 - 30 minutes after she quit crying Amanda went in to check on her. She wasn't breathing. Her heart wasn't beating. They called 911 and her husband starting doing CPR.
She got admitted to Children's Hospital. She was in a coma. On a ventilator. Just not sure of what was going to happen. They dropped her body temperature way down to help prevent her brain from swelling.
Tuesday Morning: She woke up! She opened her eyes and started to move her little arms!
Wednesday: The MRI results show moderate to severe brain damage. But for right now the doctors don't really know what that means. Since she is so little, she could push through and live a relatively normal life. Nobody can predict right now how its going to go.
Right now: Cassie is still in ICU, but she is stable. They have been working to wean her from the ventilator by turning it down a little bit at a time. She still has the feeding tube. Amanda has been able to pump and they can give her the breast milk which I think is sort of special. Some of the medicine she is on makes her really sleepy so there hasn't been a whole lot of activity lately. They removed her catheter a couple days ago.
My heart is broken for them. They are living my worst nightmare. So please any extra thoughts, prayers or support that you can send to them, do it. They are fighters and I know they are going to pull through this, but that doesn't make it any easier on any of them.
I will try to keep you all posted of any updates.
Amanda and I have become very close friends very quickly. We live super close to each other and her oldest daughter, Becca, and Lyla are bestest buddies. Amanda was pregnant when we met and gave birth to little Cassie on November 11th.
Amanda and her husband the kids were all down to our house for our New Years Eve Eve party that Sunday. I hadn't talked to her all week and last Friday afternoon I sent her a text to see what their plans were for the weekend. I didn't hear back until after I put Lyla to bed Friday night. And that one little text crushed me and has changed every thought I have had in the last week.
She said that they had Cassie in the ICU and she is in bad shape. She would call me when she could with the details.
I didn't get to talk to her until Saturday afternoon. So from Friday night when I read the text until she called me Saturday I convinced myself that Cassie got some kind of cold or flu and since she is so little she just couldn't fight it off on her own. I was wrong.
So here is what has happen in the last week:
Thursday Night: Cassie woke up fussing during the night. Amanda didn't go in right away to see if she would put herself back to sleep. About 20 - 30 minutes after she quit crying Amanda went in to check on her. She wasn't breathing. Her heart wasn't beating. They called 911 and her husband starting doing CPR.
She got admitted to Children's Hospital. She was in a coma. On a ventilator. Just not sure of what was going to happen. They dropped her body temperature way down to help prevent her brain from swelling.
Tuesday Morning: She woke up! She opened her eyes and started to move her little arms!
Wednesday: The MRI results show moderate to severe brain damage. But for right now the doctors don't really know what that means. Since she is so little, she could push through and live a relatively normal life. Nobody can predict right now how its going to go.
Right now: Cassie is still in ICU, but she is stable. They have been working to wean her from the ventilator by turning it down a little bit at a time. She still has the feeding tube. Amanda has been able to pump and they can give her the breast milk which I think is sort of special. Some of the medicine she is on makes her really sleepy so there hasn't been a whole lot of activity lately. They removed her catheter a couple days ago.
My heart is broken for them. They are living my worst nightmare. So please any extra thoughts, prayers or support that you can send to them, do it. They are fighters and I know they are going to pull through this, but that doesn't make it any easier on any of them.
I will try to keep you all posted of any updates.
Thursday, January 10, 2013
Two really can be kind of Terrible
Terrible Twos.... it can be really funny sometimes! We try not to laugh right in her face when she is genuinely so upset, but it doesn't always work. Keep in mind, this is just a little peak at her meltdown, this went on for quite a while last night!
Friday, January 4, 2013
5 Things Friday - Looking Ahead to 2013
5 Things Friday is BACK! :)
5 Things I'm looking forward to in 2013:
1. Weddings
We have a lot of weddings coming up this year for some people who we just absolutely adore! I'm excited for all the parties and to see our friends find such happiness!
2. Paying the credit card off... FINALLY
We have been trying to do this for years now and its finally becoming a reality. There is truly an end in sight. Gary has been working so hard at two different jobs and we have really not been buying any extras. We even made it through Christmas without charging anything. We are almost there and it will feel so good when its gone!
3. Lyla getting older
I know that someday I will look back and be sad about how fast she has grown up, but right now she just keeps getting more and more fun the older that she gets! She is almost totally potty trained now and she can sit at the table and eat without too much help. Its just fun to have her be more like a little person and less like a baby now. We love going to do things and we have conversations... I just love the little girl she is turning in to!
4. Vacation
This ties in with one of our weddings. Erin and Andy are getting married at the beach. So that means we get to roll it all together and have a vacation too! I am so excited! Its been WAY TOO LONG since I have been to the beach and I can't wait to take Lyla for the first time!!
5. Fixing up the backyard
Last summer we (Gary) worked really hard at cleaning up all the plants around our house and painting some of the exterior. Since the weather changed I've been working hard at cleaning up and organizing and decorating the inside. When the weather changes again I want to tackle the backyard and get it where we can enjoy it. Plus Santa brought Gary a really nice new grill for Christmas that is going to need a home! ;)
5 Things I'm looking forward to in 2013:
1. Weddings
We have a lot of weddings coming up this year for some people who we just absolutely adore! I'm excited for all the parties and to see our friends find such happiness!
2. Paying the credit card off... FINALLY
We have been trying to do this for years now and its finally becoming a reality. There is truly an end in sight. Gary has been working so hard at two different jobs and we have really not been buying any extras. We even made it through Christmas without charging anything. We are almost there and it will feel so good when its gone!
3. Lyla getting older
I know that someday I will look back and be sad about how fast she has grown up, but right now she just keeps getting more and more fun the older that she gets! She is almost totally potty trained now and she can sit at the table and eat without too much help. Its just fun to have her be more like a little person and less like a baby now. We love going to do things and we have conversations... I just love the little girl she is turning in to!
4. Vacation
This ties in with one of our weddings. Erin and Andy are getting married at the beach. So that means we get to roll it all together and have a vacation too! I am so excited! Its been WAY TOO LONG since I have been to the beach and I can't wait to take Lyla for the first time!!
5. Fixing up the backyard
Last summer we (Gary) worked really hard at cleaning up all the plants around our house and painting some of the exterior. Since the weather changed I've been working hard at cleaning up and organizing and decorating the inside. When the weather changes again I want to tackle the backyard and get it where we can enjoy it. Plus Santa brought Gary a really nice new grill for Christmas that is going to need a home! ;)
Thursday, January 3, 2013
1st Annual New Years Eve EVE Party
Sunday we had our 1st Annual New Years Eve EVE Party!
We started this last year because most of our group of friends already have things that they do every year for New Years and we always like to see them during the holidays, so we started having a party at our house the day before New Years Eve... New Years Eve EVE!
Last year was a pretty small group, just Gary and I (Lyla was in bed before anybody got there), Ashley & Jeremy and Erin & Andy. We had a blast. But this year... this year we had a lot more people! We started in the afternoon so we could all watch the Steelers game and then we kept it going through the evening. Such a good time getting to see everyone and just relax! Can't wait for next year's party!
We started this last year because most of our group of friends already have things that they do every year for New Years and we always like to see them during the holidays, so we started having a party at our house the day before New Years Eve... New Years Eve EVE!
Last year was a pretty small group, just Gary and I (Lyla was in bed before anybody got there), Ashley & Jeremy and Erin & Andy. We had a blast. But this year... this year we had a lot more people! We started in the afternoon so we could all watch the Steelers game and then we kept it going through the evening. Such a good time getting to see everyone and just relax! Can't wait for next year's party!
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